National Organization for Rare Disorders Inc

Analysis

National Organization for Rare Disorders Inc is a registered charity in United States, based in Danbury, CT. It received its IRS tax-exemption ruling in May 1989, 37 years ago. The IRS classifies it as a publicly supported organisation (donations from the general public) under section 501(c)(3), and contributions to it are listed as tax-deductible.

In the financial year ending December 2023, National Organization for Rare Disorders Inc reported income of $66.4m and spending of $52.8m, leaving 20% of income unspent that year. Across the 5 years on record, from December 2019 to December 2023, income grew from $52.4m to $66.4m (+27%), an average of +6.1% a year. The sharpest change came in the year to December 2022, when income rose by 39%. Over the whole period it spent 96% of the income it received.

Among 72,936 United States charities whose main cause is other charitable purposes and that reported income, National Organization for Rare Disorders Inc sits at the 99th percentile: it is one of the largest 1% in its cause. Against every charity in United States with reported income it ranks in the 99th percentile, and in the 99th percentile within CT. Charities of a similar size with the same main cause include Adventhealth Senior Care Inc ($66.4m), Childrens Service Society of Wisconsin ($66.5m) and Mercy Health Services Inc ($66.1m).

On its Form 990 for the period ending December 2023, revenue came from contributions and grants 84% and program service revenue 13% of the total. Compensation of current officers, directors and key employees was $1.2m (2.2% of expenses). Other salaries and wages came to $8.3m. At year end it held assets of $65.2m against liabilities of $4.5m, net assets of $60.6m. It reported 118 employees.