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The Myalgic Encephalopathy Association Limited

RegisteredRegistered charity number 801279BuckinghamHealth and saving lives
Income£895k2025-12-31
Spending£1.2msame year
Spent / received77%5-year average
Size in its cause88th pctHealth and saving lives
Registered1989Charitable company
Employees21latest return

Analysis

The Myalgic Encephalopathy Association Limited is a registered charity in England and Wales, based in Buckingham. It was registered in April 1989, 37 years ago. Its declared purposes cover education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 02361986). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending December 2025, The Myalgic Encephalopathy Association Limited reported income of £895k and spending of £1.2m, spending 138% of what it took in. Across the 5 years on record, from December 2021 to December 2025, income fell from £1.3m to £895k (-29%), an average of -8.3% a year. The sharpest change came in the year to December 2022, when income dropped by 32%. Over the whole period it spent 77% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, The Myalgic Encephalopathy Association Limited sits at the 88th percentile: it is larger than about 88% of them. Against every charity in England and Wales with reported income it ranks in the 93rd percentile. Charities of a similar size with the same main cause include Sidmouth Victoria Hospital Comforts Fund (£895k), Children's Heart Surgery Fund (£895k) and Lets for Life (£893k).

In its latest detailed accounts, income came from donations and legacies 66%, investments 18%, charitable activities 10.0% and trading 5.7%. Gifts in wills alone brought in £297k. Charitable activities took 89% of spending and raising funds 9.8%. Grants to other organisations totalled £306k. Reserves of £1.6m would cover about 15 months of spending at that rate. It employed 21 people.

Income and spending

£0£316k£632k£949k£1.3m2021 Income: £1,264,8432021 Spending: £486,32620212022 Income: £860,5202022 Spending: £631,40120222023 Income: £1,017,8452023 Spending: £753,61020232024 Income: £1,118,3042024 Spending: £865,24420242025 Income: £894,5892025 Spending: £1,235,6422025
IncomeSpending

Where the income comes from

  • Donations 33%
  • Legacies 33%
  • Charitable activities 10.0%
  • Trading 5.7%
  • Investments 18%
  • Other 0.1%

In the charity's own words

To provide information and support for people with ME/CFS/PVFS

Similar-sized charities, same cause

CharityLocationIncome
Sidmouth Victoria Hospital Comforts FundSidmouth£895k
Children's Heart Surgery FundLeeds£895k
Lets for LifeCheshire£893k
British Association of Oral and Maxillofacial SurgeonsLondon£895k