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Huntingtons Disease Association

RegisteredRegistered charity number 296453LiverpoolHealth and saving lives
Income£3.2m2026-03-31
Spending£2.8msame year
Spent / received93%5-year average
Size in its cause95th pctHealth and saving lives
Registered1987Charitable company
Employees52latest return

Analysis

Huntingtons Disease Association is a registered charity in England and Wales, based in Liverpool. It was registered in March 1987, 39 years ago. Its declared purposes cover education/training, the advancement of health or saving of lives, disability and the prevention or relief of poverty, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 02021975). It says it makes grants to individuals, makes grants to organisations and provides human resources.

In the financial year ending March 2026, Huntingtons Disease Association reported income of £3.2m and spending of £2.8m, spending 88% of its income. Across the 5 years on record, from March 2022 to March 2026, income grew from £2.2m to £3.2m (+46%), an average of +10% a year. The sharpest change came in the year to March 2026, when income rose by 25%. Over the whole period it spent 93% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Huntingtons Disease Association sits at the 95th percentile: it is larger than about 95% of them. Against every charity in England and Wales with reported income it ranks in the 97th percentile. Charities of a similar size with the same main cause include The Big C Appeal Limited (£3.2m), One Heart - Lev Echod (£3.2m) and Kent Association for Spina Bifida and Hydrocephalus (£3.2m).

In its latest detailed accounts, income came from donations and legacies 82%, charitable activities 15%, trading 1.4% and investments 1.2%. Gifts in wills alone brought in £1.5m. Charitable activities took 86% of spending and raising funds 13%. Reserves of £2.0m would cover about 9 months of spending at that rate. It employed 52 people.

Income and spending

£0£793k£1.6m£2.4m£3.2m2022 Income: £2,166,3252022 Spending: £1,419,52120222023 Income: £2,003,5782023 Spending: £2,034,56620232024 Income: £2,266,8172024 Spending: £2,372,72520242025 Income: £2,531,8432025 Spending: £2,716,81720252026 Income: £3,171,3642026 Spending: £2,779,0172026
IncomeSpending

Where the income comes from

  • Donations 35%
  • Legacies 47%
  • Charitable activities 15%
  • Trading 1.4%
  • Investments 1.2%

In the charity's own words

Relief and treatment of those suffering from or believed to be suffering from Huntington's Disease and to provide support to them and their families. The Association also sponsors research and is involved in disseminating the results of research.

Similar-sized charities, same cause

CharityLocationIncome
The Big C Appeal LimitedNorwich£3.2m
One Heart - Lev EchodLondon£3.2m
Kent Association for Spina Bifida and HydrocephalusKent£3.2m
Up - Unlocking PotentialLondon£3.2m