Motor Neurone Disease Association

Analysis

Motor Neurone Disease Association is a registered charity in England and Wales, based in Northampton. It was registered in May 1986, 40 years ago. Its declared purposes cover disability, which this site groups under disability. Legally it is a charitable company (Companies House number 02007023). It says it makes grants to individuals, makes grants to organisations and provides human resources.

In the financial year ending December 2025, Motor Neurone Disease Association reported income of £48.0m and spending of £44.8m, spending 93% of its income. Across the 5 years on record, from December 2021 to December 2025, income grew from £28.9m to £48.0m (+66%), an average of +14% a year. The sharpest change came in the year to December 2023, when income rose by 26%. Over the whole period it spent 79% of the income it received.

Among 12,871 England and Wales charities whose main cause is disability and that reported income, Motor Neurone Disease Association sits at the 100th percentile: it is one of the largest 1% in its cause. Against every charity in England and Wales with reported income it ranks in the 100th percentile. Charities of a similar size with the same main cause include Milestones Trust (£46.7m), National Star Foundation (£49.6m) and Family Fund Trust (£44.9m).

In its latest detailed accounts, income came from donations and legacies 91%, charitable activities 4.6% and investments 4.1%. Gifts in wills alone brought in £11.8m. Charitable activities took 78% of spending and raising funds 22%. Grants to other organisations totalled £13.5m. Reserves of £46.0m would cover about 12 months of spending at that rate. It employed 280 people.