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The National Society for Phenylketonuria (United Kingdom) Limited

Registered · see notesRegistered charity number 273670DerbyshireHealth and saving lives
Income£160k2025-10-31
Spending£175ksame year
Spent / received90%5-year average
Size in its cause70th pctHealth and saving lives
Registered1977Charitable company
Employees–latest return

Analysis

The National Society for Phenylketonuria (United Kingdom) Limited is a registered charity in England and Wales, based in Derbyshire. It was registered in June 1977, 49 years ago. Its declared purposes cover education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 01256124). It says it makes grants to individuals, makes grants to organisations and provides advocacy/advice/information.

In the financial year ending October 2025, The National Society for Phenylketonuria (United Kingdom) Limited reported income of £160k and spending of £175k, spending 109% of what it took in. Across the 5 years on record, from October 2021 to October 2025, income grew from £90k to £160k (+78%), an average of +15% a year. The sharpest change came in the year to October 2022, when income rose by 52%. Over the whole period it spent 90% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, The National Society for Phenylketonuria (United Kingdom) Limited sits at the 70th percentile: it is larger than about 70% of them. Against every charity in England and Wales with reported income it ranks in the 78th percentile. Charities of a similar size with the same main cause include Home-Start Erewash (£160k), Achieve Change and Engagement Ace (£160k) and Fighting Fit Torfaen (£160k).

Data notes from the register: The latest annual return was received after its deadline.

Income and spending

£0£51k£101k£152k£203k2021 Income: £90,0602021 Spending: £79,81020212022 Income: £136,6492022 Spending: £114,96920222023 Income: £158,0652023 Spending: £136,09720232024 Income: £202,5102024 Spending: £166,86920242025 Income: £159,9072025 Spending: £174,5862025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

The Society exists to provide help and support to people with PKU and their families and carers.We continue to promote the education,medical and welfare of PKU sufferers.

Similar-sized charities, same cause

CharityLocationIncome
Home-Start ErewashIlkeston£160k
Achieve Change and Engagement AceLancaster£160k
Fighting Fit TorfaenPontypool£160k
Talk Direct Charitable TrustBatley£160k