Kleefstra Syndrome UK
Analysis
Kleefstra Syndrome UK is a registered charity in England and Wales, based in ashbourne. It was registered in April 2024, 2 years ago. Its declared purposes cover disability, which this site groups under disability. Legally it is a charitable incorporated organisation (CIO). It says it provides advocacy/advice/information.
In the financial year ending December 2025, Kleefstra Syndrome UK reported income of £15k and spending of £2,012, leaving 87% of income unspent that year. Across the 2 years on record, from December 2024 to December 2025, income grew from £3,587 to £15k (+328%), an average of +328% a year. The sharpest change came in the year to December 2025, when income rose by 328%. Over the whole period it spent 81% of the income it received.
Among 12,871 England and Wales charities whose main cause is disability and that reported income, Kleefstra Syndrome UK sits at the 35th percentile: it is larger than about 35% of them. Against every charity in England and Wales with reported income it ranks in the 39th percentile. Charities of a similar size with the same main cause include Dine with US (£15k), Living Joy Ltd (£15k) and Chard & District Riding for the Disabled Association Limited (£15k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
The relief of Kleefstra Syndrome by: increasing awareness of Kleefstra Syndrome in the UK; promoting research into the causes, effects, treatment and management of Kleefstra Syndrome and disseminating and publishing the useful results of any such research; and providing help and support to families affected by the Syndrome
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Dine with US | Bedford | £15k |
| Living Joy Ltd | Rainham | £15k |
| Chard & District Riding for the Disabled Association Limited | Axminster | £15k |
| Hull and District Cerebral Palsy Society | Hull | £15k |