CheckMyDonation

Batten Disease Family Association CIO

RegisteredRegistered charity number 1205650West YorkshireHealth and saving lives
Income£491k2025-12-31
Spending£634ksame year
Spent / received129%2-year average
Size in its cause83rd pctHealth and saving lives
Registered2023CIO
Employees–latest return

Analysis

Batten Disease Family Association CIO is a registered charity in England and Wales, based in West Yorkshire. It was registered in November 2023, 3 years ago. Its declared purposes cover education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending December 2025, Batten Disease Family Association CIO reported income of £491k and spending of £634k, spending 129% of what it took in. Over the whole period it spent 129% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Batten Disease Family Association CIO sits at the 83rd percentile: it is larger than about 83% of them. Against every charity in England and Wales with reported income it ranks in the 90th percentile. Charities of a similar size with the same main cause include Assistance Support and Self Help in Surviving Trauma (£491k), International Lymphoedema Framework (£491k) and Humraaz (£491k).

Income and spending

£0£159k£317k£476k£634k2024 Income: £02024 Spending: £020242025 Income: £491,4622025 Spending: £634,2692025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and for promoting awareness of, and research into, the disease

Similar-sized charities, same cause

CharityLocationIncome
Assistance Support and Self Help in Surviving TraumaWarwickshire£491k
International Lymphoedema FrameworkLondon£491k
HumraazBlackburn£491k
Irish Community ServicesKent£492k