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Cure DHDDS

RegisteredRegistered charity number 1202643LondonHealth and saving lives
Income£131k2025-03-31
Spending£69ksame year
Spent / received40%2-year average
Size in its cause67th pctHealth and saving lives
Registered2023CIO
Employees–latest return

Analysis

Cure DHDDS is a registered charity in England and Wales, based in London. It was registered in April 2023, 3 years ago. Its declared purposes cover the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it sponsors or undertakes research.

In the financial year ending March 2025, Cure DHDDS reported income of £131k and spending of £69k, leaving 47% of income unspent that year. Across the 2 years on record, from March 2024 to March 2025, income fell from £236k to £131k (-44%), an average of -44% a year. The sharpest change came in the year to March 2025, when income dropped by 44%. Over the whole period it spent 40% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Cure DHDDS sits at the 67th percentile: it is larger than about 67% of them. Against every charity in England and Wales with reported income it ranks in the 75th percentile. Charities of a similar size with the same main cause include Brahmarishi Mission (£131k), Southport Football Club Community Foundation (£132k) and The Sparkle Foundation UK (£131k).

Income and spending

£0£59k£118k£177k£236k2024 Income: £236,2212024 Spending: £76,98320242025 Income: £131,4952025 Spending: £69,0712025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

The main activities of the charity are to relieve the needs of those affected by DHDDS Disease, to support families affected by DHDDS mutations and drive research into them. We achieve this by providing the latest information on the condition to families and health professionals, providing funds for further scientific research and raising awareness of the disease.

Similar-sized charities, same cause

CharityLocationIncome
Brahmarishi MissionHounslow£131k
Southport Football Club Community FoundationSouthport£132k
The Sparkle Foundation UKPorthleven£131k
Scouloudi FoundationLondon£132k