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Keep Me Breathing

Registered · see notesRegistered charity number 1201757West SussexHealth and saving lives
Income£134k2025-02-28
Spending£175ksame year
Spent / received43%2-year average
Size in its cause67th pctHealth and saving lives
Registered2023CIO
Employees–latest return

Analysis

Keep Me Breathing is a registered charity in England and Wales, based in West Sussex. It was registered in January 2023, 3 years ago. Its declared purposes cover general charitable purposes and the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it makes grants to organisations and provides advocacy/advice/information.

In the financial year ending February 2025, Keep Me Breathing reported income of £134k and spending of £175k, spending 130% of what it took in. Across the 2 years on record, from September 2023 to February 2025, income fell from £345k to £134k (-61%), an average of -61% a year. The sharpest change came in the year to February 2025, when income dropped by 61%. Over the whole period it spent 43% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Keep Me Breathing sits at the 67th percentile: it is larger than about 67% of them. Against every charity in England and Wales with reported income it ranks in the 75th percentile. Charities of a similar size with the same main cause include Soberistas CIO (£134k), Sydney and Phyllis Goldberg Memorial Charitable Trust (£134k) and Herefordshire and Worcestershire Health and Care NHS Trust Charitable Funds (£134k).

Data notes from the register: The latest annual return was received after its deadline.

Income and spending

£0£86k£173k£259k£345k2023 Income: £345,0922023 Spending: £32,10320232025 Income: £134,3402025 Spending: £174,6252025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS.

Similar-sized charities, same cause

CharityLocationIncome
Soberistas CIOSheffield£134k
Sydney and Phyllis Goldberg Memorial Charitable TrustLondon£134k
Herefordshire and Worcestershire Health and Care NHS Trust Charitable FundsWorcester£134k
Oasis Community Hub: BlakenhaleLondon£134k