Keep Me Breathing
Analysis
Keep Me Breathing is a registered charity in England and Wales, based in West Sussex. It was registered in January 2023, 3 years ago. Its declared purposes cover general charitable purposes and the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it makes grants to organisations and provides advocacy/advice/information.
In the financial year ending February 2025, Keep Me Breathing reported income of £134k and spending of £175k, spending 130% of what it took in. Across the 2 years on record, from September 2023 to February 2025, income fell from £345k to £134k (-61%), an average of -61% a year. The sharpest change came in the year to February 2025, when income dropped by 61%. Over the whole period it spent 43% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Keep Me Breathing sits at the 67th percentile: it is larger than about 67% of them. Against every charity in England and Wales with reported income it ranks in the 75th percentile. Charities of a similar size with the same main cause include Soberistas CIO (£134k), Sydney and Phyllis Goldberg Memorial Charitable Trust (£134k) and Herefordshire and Worcestershire Health and Care NHS Trust Charitable Funds (£134k).
Data notes from the register: The latest annual return was received after its deadline.
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Soberistas CIO | Sheffield | £134k |
| Sydney and Phyllis Goldberg Memorial Charitable Trust | London | £134k |
| Herefordshire and Worcestershire Health and Care NHS Trust Charitable Funds | Worcester | £134k |
| Oasis Community Hub: Blakenhale | London | £134k |