UK Lysosomal Storage Disorder Collaborative
Analysis
UK Lysosomal Storage Disorder Collaborative is a registered charity in England and Wales, based in Amersham. It was registered in November 2022, 4 years ago. Its declared purposes cover education/training and the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it provides advocacy/advice/information and acts as an umbrella or resource body.
In the financial year ending December 2025, UK Lysosomal Storage Disorder Collaborative reported income of £40k and spending of £18k, leaving 54% of income unspent that year. Over the whole period it spent 46% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, UK Lysosomal Storage Disorder Collaborative sits at the 49th percentile: it is larger than about 49% of them. Against every charity in England and Wales with reported income it ranks in the 57th percentile. Charities of a similar size with the same main cause include Hertfordshire Community NHS Trust Charitable Fund (£40k), Schroder Charity (£40k) and I.k. Foundation (£40k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
The UK Lysosomal Storage Disorder Collaborative (LSD Collaborative) was established to advance health, relieve sickness and enhance the wellbeing of those affected by LSDs and other rare disorders, plus their families and carers, to advance education and to stimulate the interest in all matters concerning these diseases, anywhere in the UK and/or overseas.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Hertfordshire Community NHS Trust Charitable Fund | Darwen | £40k |
| Schroder Charity | Surrey | £40k |
| I.k. Foundation | Northwood | £40k |
| Darul Ehsan Foundation | London | £40k |