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Marfan Trust

RegisteredRegistered charity number 1198847KentHealth and saving lives
Income£179k2025-12-31
Spending£301ksame year
Spent / received53%4-year average
Size in its cause71st pctHealth and saving lives
Registered2022CIO
Employees–latest return

Analysis

Marfan Trust is a registered charity in England and Wales, based in Kent. It was registered in May 2022, 4 years ago. Its declared purposes cover education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending December 2025, Marfan Trust reported income of £179k and spending of £301k, spending 168% of what it took in. The sharpest change came in the year to December 2024, when income dropped by 55%. Over the whole period it spent 53% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Marfan Trust sits at the 71st percentile: it is larger than about 71% of them. Against every charity in England and Wales with reported income it ranks in the 79th percentile. Charities of a similar size with the same main cause include Restoration for Abused People (R.a.p) (£179k), Life Bridging Works (£179k) and The Speedway Riders' Benevolent Fund (£179k).

Income and spending

£0£158k£316k£473k£631k2022 Income: £02022 Spending: £020222023 Income: £631,2832023 Spending: £31,05920232024 Income: £287,0832024 Spending: £246,01120242025 Income: £178,8872025 Spending: £300,5202025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

Marfan Trust raises funds to support medical research so that more is know about Marfan syndrome and its management. The results of our internationally recognised research enables doctors and surgeons to provide better treatment for patients in the short and long term. Our helpline and website www.marfantrust.org provide information. An annual supporter information day is held in October.

Similar-sized charities, same cause

CharityLocationIncome
Restoration for Abused People (R.a.p)London£179k
Life Bridging WorksHailsham£179k
The Speedway Riders' Benevolent FundLytham St Annes£179k
The Tin Hat CentreNottinghamshire£179k