XLH UK
Analysis
XLH UK is a registered charity in England and Wales, based in Herefordshire. It was registered in November 2021, 5 years ago. Its declared purposes cover the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it provides advocacy/advice/information.
In the financial year ending January 2026, XLH UK reported income of £24k and spending of £15k, leaving 38% of income unspent that year. Across the 4 years on record, from January 2023 to January 2026, income grew from £23k to £24k (+2.9%), an average of +1.0% a year. The sharpest change came in the year to January 2026, when income rose by 79%. Over the whole period it spent 105% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, XLH UK sits at the 41st percentile: it is larger than about 40% of them. Against every charity in England and Wales with reported income it ranks in the 48th percentile. Charities of a similar size with the same main cause include Latifa Khatun Memorial Trust (£24k), Fresh Charity (£24k) and The Philip Maher Foundation (£24k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Latifa Khatun Memorial Trust | London | £24k |
| Fresh Charity | Bournemouth | £24k |
| The Philip Maher Foundation | Blackburn | £24k |
| Capheaton Village Institute | Newcastle upon Tyne | £24k |