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Cure Myotonic Dystrophy UK Charity (CDM)

RegisteredRegistered charity number 1191217ScunthorpeHealth and saving lives
Income£72k2025-04-05
Spending£67ksame year
Spent / received90%5-year average
Size in its cause58th pctHealth and saving lives
Registered2020CIO
Employees–latest return

Analysis

Cure Myotonic Dystrophy UK Charity (CDM) is a registered charity in England and Wales, based in Scunthorpe. It was registered in September 2020, 6 years ago. Its declared purposes cover general charitable purposes, education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it makes grants to individuals, makes grants to organisations and provides advocacy/advice/information.

In the financial year ending April 2025, Cure Myotonic Dystrophy UK Charity (CDM) reported income of £72k and spending of £67k, spending 93% of its income. Across the 5 years on record, from April 2021 to April 2025, income grew from £20k to £72k (+265%), an average of +38% a year. The sharpest change came in the year to April 2022, when income rose by 90%. Over the whole period it spent 90% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Cure Myotonic Dystrophy UK Charity (CDM) sits at the 58th percentile: it is larger than about 58% of them. Against every charity in England and Wales with reported income it ranks in the 66th percentile. Charities of a similar size with the same main cause include East Lancashire Community Action Project (£72k), Music Therapy Lambeth (£72k) and Chinese Health Information Centre (£72k).

Income and spending

£0£20k£39k£59k£78k2021 Income: £19,5962021 Spending: £2,84520212022 Income: £37,1372022 Spending: £17,50520222023 Income: £52,0132023 Spending: £53,66120232024 Income: £64,0302024 Spending: £78,23220242025 Income: £71,6112025 Spending: £66,8532025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

Preserve and protect good health among, and relieve the needs of, people living with Myotonic Dystrophy, their families and carers, in particular but not exclusively by: (a) providing information, help and support; (b) making financial donations to support research into Myotonic Dystrophy;(c) raising awareness of Myotonic Dystrophy within the general public, medical and scientific community

Similar-sized charities, same cause

CharityLocationIncome
East Lancashire Community Action ProjectNelson£72k
Music Therapy LambethLondon£72k
Chinese Health Information CentreManchester£72k
Atopic Dermatitis Relief (Trading As Kumi Uri) LtdLondon£72k