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Global Porphyria Advocacy Coalition

RegisteredRegistered charity number 1189694NorwichHealth and saving lives
Income£16k2025-11-10
Spending£19ksame year
Spent / received55%5-year average
Size in its cause34th pctHealth and saving lives
Registered2020CIO
Employees–latest return

Analysis

Global Porphyria Advocacy Coalition is a registered charity in England and Wales, based in Norwich. It was registered in May 2020, 6 years ago. Its declared purposes cover the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending November 2025, Global Porphyria Advocacy Coalition reported income of £16k and spending of £19k, spending 122% of what it took in. The sharpest change came in the year to November 2024, when income rose by 180%. Over the whole period it spent 55% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Global Porphyria Advocacy Coalition sits at the 34th percentile: it is larger than about 34% of them. Against every charity in England and Wales with reported income it ranks in the 40th percentile. Charities of a similar size with the same main cause include Glangrwyney Village Hall (£16k), Hope Church Rotherham (£16k) and Bratton Clovelly Parish Hall (£16k).

Income and spending

£0£6,213£12k£19k£25k2021 Income: £02021 Spending: £020212022 Income: £6,8672022 Spending: £71420222023 Income: £8,8842023 Spending: £6,91720232024 Income: £24,8532024 Spending: £4,31320242025 Income: £15,7962025 Spending: £19,2602025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

The Global Porphyria Advocacy Coalition (GPAC) operates as an umbrella organization for national porphyria patient advocacy organizations, representing all types of porphyria. We work to support all individuals impacted by porphyria and to safeguard their interests. GPAC connects, supports and engages porphyria patients around the world through an integrated international network.

Similar-sized charities, same cause

CharityLocationIncome
Glangrwyney Village HallPowys£16k
Hope Church RotherhamSouth Yorkshire£16k
Bratton Clovelly Parish HallOkehampton£16k
African Sisters of St Mary (CMM) Support GroupWarwick£16k