The Smith-Magenis Syndrome (SMS) Foundation UK CIO
Analysis
The Smith-Magenis Syndrome (SMS) Foundation UK CIO is a registered charity in England and Wales, based in Wiltshire. It was registered in November 2019, 7 years ago. Its declared purposes cover general charitable purposes, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.
In the financial year ending December 2025, The Smith-Magenis Syndrome (SMS) Foundation UK CIO reported income of £191k and spending of £193k, spending 101% of its income. Across the 5 years on record, from June 2021 to December 2025, income grew from £78k to £191k (+143%), an average of +25% a year. The sharpest change came in the year to December 2025, when income rose by 134%. Over the whole period it spent 111% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, The Smith-Magenis Syndrome (SMS) Foundation UK CIO sits at the 72nd percentile: it is larger than about 72% of them. Against every charity in England and Wales with reported income it ranks in the 80th percentile. Charities of a similar size with the same main cause include JDC Welfare UK Ltd (£190k), Eglise En Mission Church (£191k) and Lane End Farm Trust (£190k).
Data notes from the register: Spending has exceeded income in each of the last three reported years, so the charity has been drawing on reserves or other funds.
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
We are a small charity that supports families living with Smith-Magenis syndrome (SMS), a rare condition that occurs once in every 15-25,000 births. People with SMS have complex needs and behaviours, along with a learning disability. Our aim is to provide all caregivers and professionals with the knowledge and understanding to feel empowered and confident to support a person with SMS.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| JDC Welfare UK Ltd | Ilford | £190k |
| Eglise En Mission Church | Manchester | £191k |
| Lane End Farm Trust | Derbyshire | £190k |
| The Edward Hain Centre | Cornwall | £191k |