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Pompe Support Network

RegisteredRegistered charity number 1186383PetersfieldHealth and saving lives
Income£94k2025-03-31
Spending£68ksame year
Spent / received86%5-year average
Size in its cause62nd pctHealth and saving lives
Registered2019CIO
Employees–latest return

Analysis

Pompe Support Network is a registered charity in England and Wales, based in Petersfield. It was registered in November 2019, 7 years ago. Its declared purposes cover the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it makes grants to individuals, makes grants to organisations and provides services.

In the financial year ending March 2025, Pompe Support Network reported income of £94k and spending of £68k, leaving 27% of income unspent that year. Across the 5 years on record, from March 2021 to March 2025, income grew from £93k to £94k (+0.3%), an average of +0.1% a year. The sharpest change came in the year to March 2025, when income rose by 30%. Over the whole period it spent 86% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Pompe Support Network sits at the 62nd percentile: it is larger than about 62% of them. Against every charity in England and Wales with reported income it ranks in the 70th percentile. Charities of a similar size with the same main cause include Norwich Church of England Young Men's Society (£94k), Friends of Mahalir Aran Trust (£94k) and Eccabi Ltd (£93k).

Income and spending

£0£30k£59k£89k£119k2021 Income: £93,2922021 Spending: £45,33220212022 Income: £79,5262022 Spending: £118,70920222023 Income: £92,2762023 Spending: £74,50620232024 Income: £71,8962024 Spending: £61,25620242025 Income: £93,5402025 Spending: £68,3262025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

The Pompe Support Network is an organisation developed by the UK Pompe community in order to support others within the community. Together we: - Provide peer to peer support - Support research into medical and supportive care. - Provide information about promising medical developments. - Advocate for access to medical therapies or devices. - Share life experiences

Similar-sized charities, same cause

CharityLocationIncome
Norwich Church of England Young Men's SocietyNorfolk£94k
Friends of Mahalir Aran TrustLondon£94k
Eccabi LtdLiskeard£93k
The Eventhall Family Charitable TrustAltrincham£94k