The Schinzel-Giedion Syndrome Foundation

Analysis

The Schinzel-Giedion Syndrome Foundation is a registered charity in England and Wales, based in Crawley. It was registered in November 2019, 7 years ago. Its declared purposes cover the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it makes grants to individuals, makes grants to organisations and provides advocacy/advice/information.

In the financial year ending March 2025, The Schinzel-Giedion Syndrome Foundation reported income of £68k and spending of £64k, spending 94% of its income. Across the 5 years on record, from March 2021 to March 2025, income grew from £29k to £68k (+134%), an average of +24% a year. The sharpest change came in the year to March 2023, when income rose by 190%. Over the whole period it spent 55% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, The Schinzel-Giedion Syndrome Foundation sits at the 57th percentile: it is larger than about 57% of them. Against every charity in England and Wales with reported income it ranks in the 65th percentile. Charities of a similar size with the same main cause include Maurice & Rochelle Miller Foundation (£68k), The Aldgate Freedom Foundation (£68k) and The Kadima Foundation (£68k).