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Timothy Syndrome Alliance (Tsa)

RegisteredRegistered charity number 1185523StroudHealth and saving lives
Income£205k2025-11-30
Spending£129ksame year
Spent / received50%5-year average
Size in its cause73rd pctHealth and saving lives
Registered2019CIO
Employees–latest return

Analysis

Timothy Syndrome Alliance (Tsa) is a registered charity in England and Wales, based in Stroud. It was registered in September 2019, 7 years ago. Its declared purposes cover the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending November 2025, Timothy Syndrome Alliance (Tsa) reported income of £205k and spending of £129k, leaving 37% of income unspent that year. Across the 5 years on record, from November 2021 to November 2025, income grew from £6,084 to £205k (+3274%), an average of +141% a year. The sharpest change came in the year to November 2024, when income rose by 338%. Over the whole period it spent 50% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Timothy Syndrome Alliance (Tsa) sits at the 73rd percentile: it is larger than about 73% of them. Against every charity in England and Wales with reported income it ranks in the 81st percentile. Charities of a similar size with the same main cause include Bristol Black Carers (£205k), The Bobby Colleran Trust (£205k) and Healthwatch Richmond (£205k).

Income and spending

£0£51k£103k£154k£205k2021 Income: £6,0842021 Spending: £3,22620212022 Income: £10,0052022 Spending: £4,70620222023 Income: £21,4052023 Spending: £12,30520232024 Income: £93,6872024 Spending: £19,75620242025 Income: £205,3042025 Spending: £128,9962025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

Timothy Syndrome Alliance (TSA) supports individuals with CACNA1C-Related Disorders, including Timothy Syndrome and Long QT8, and their families/carers. From the UK, we provide guidance, information, and advocacy to families worldwide, raise awareness, and promote research and clinical development to improve understanding, care, and treatment.

Similar-sized charities, same cause

CharityLocationIncome
Bristol Black CarersUnited Kingdom£205k
The Bobby Colleran TrustLiverpool£205k
Healthwatch RichmondTwickenham£205k
Churchill Lines FoundationSouth Glamorgan£205k