International Prader-Willi Syndrome Organisation

Analysis

International Prader-Willi Syndrome Organisation is a registered charity in England and Wales, based in Cambridge. It was registered in April 2019, 7 years ago. Its declared purposes cover the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it makes grants to individuals, makes grants to organisations and provides advocacy/advice/information.

In the financial year ending December 2025, International Prader-Willi Syndrome Organisation reported income of £207k and spending of £221k, spending 107% of what it took in. Across the 5 years on record, from December 2021 to December 2025, income fell from £247k to £207k (-16%), an average of -4.3% a year. The sharpest change came in the year to December 2023, when income dropped by 51%. Over the whole period it spent 86% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, International Prader-Willi Syndrome Organisation sits at the 73rd percentile: it is larger than about 73% of them. Against every charity in England and Wales with reported income it ranks in the 81st percentile. Charities of a similar size with the same main cause include The Aylesham and Snowdown Social Welfare Scheme (£207k), Chinese Community Centre - Birmingham (£207k) and Olive Tree Cancer Support Group (£207k).