The 1p36 Family Trust
Analysis
The 1p36 Family Trust is a registered charity in England and Wales, based in Kent. It was registered in February 2019, 7 years ago. Its declared purposes cover the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it provides services and provides advocacy/advice/information.
In the financial year ending March 2025, The 1p36 Family Trust reported income of £21k and spending of £25k, spending 121% of what it took in. Across the 5 years on record, from March 2021 to March 2025, income grew from £3,736 to £21k (+456%), an average of +54% a year. The sharpest change came in the year to March 2022, when income rose by 185%. Over the whole period it spent 89% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, The 1p36 Family Trust sits at the 38th percentile: it is larger than about 38% of them. Against every charity in England and Wales with reported income it ranks in the 45th percentile. Charities of a similar size with the same main cause include Euro Relief (£21k), Akamba Children's Education Fund (£21k) and The Four Villages' Day Centre (£21k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Euro Relief | B12 0ld | £21k |
| Akamba Children's Education Fund | Solihull | £21k |
| The Four Villages' Day Centre | Surrey | £21k |
| Lance Coates Charitable Trust (1969) | Aylesbury | £21k |