Barth Syndrome UK
Analysis
Barth Syndrome UK is a registered charity in England and Wales, based in Romsey. It was registered in January 2019, 7 years ago. Its declared purposes cover general charitable purposes and the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it makes grants to individuals, makes grants to organisations and provides services.
In the financial year ending December 2025, Barth Syndrome UK reported income of £58k and spending of £37k, leaving 37% of income unspent that year. Across the 5 years on record, from December 2021 to December 2025, income grew from £31k to £58k (+87%), an average of +17% a year. The sharpest change came in the year to December 2023, when income rose by 570%. Over the whole period it spent 108% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Barth Syndrome UK sits at the 54th percentile: it is larger than about 54% of them. Against every charity in England and Wales with reported income it ranks in the 63rd percentile. Charities of a similar size with the same main cause include Acts of Love International (£58k), Sri Lankan Kidney Foundation (£58k) and Jack Livingstone Charitable Trust (£58k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care.We fund research into treatments and a cure.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Acts of Love International | Stockton-On-Tees | £58k |
| Sri Lankan Kidney Foundation | Lincolnshire | £58k |
| Jack Livingstone Charitable Trust | Altrincham | £58k |
| Holme Pierrepont Canoe Club | Nottingham | £58k |