Cure Usher Syndrome
Analysis
Cure Usher Syndrome is a registered charity in England and Wales, based in Manchester. It was registered in December 2018, 8 years ago. Its declared purposes cover general charitable purposes, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it makes grants to individuals, makes grants to organisations and provides advocacy/advice/information.
In the financial year ending December 2025, Cure Usher Syndrome reported income of £247k and spending of £175k, leaving 29% of income unspent that year. Across the 5 years on record, from December 2021 to December 2025, income grew from £6,625 to £247k (+3629%), an average of +147% a year. The sharpest change came in the year to December 2022, when income rose by 531%. Over the whole period it spent 76% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Cure Usher Syndrome sits at the 75th percentile: it is larger than about 75% of them. Against every charity in England and Wales with reported income it ranks in the 83rd percentile. Charities of a similar size with the same main cause include Al Mustafa Trust International (£247k), Fifth Sense (£247k) and Rekindle (£247k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
Working to increase awareness and raise funds for research into a cure for Usher syndrome, the leading cause of genetically inherited combined hearing and sight loss.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Al Mustafa Trust International | Rotherham | £247k |
| Fifth Sense | Oxfordshire | £247k |
| Rekindle | Powys | £247k |
| The Ectopic Pregnancy Trust | London | £247k |