Bardet-Biedl Syndrome UK (BBS UK)
Analysis
Bardet-Biedl Syndrome UK (BBS UK) is a registered charity in England and Wales, based in Harwich. It was registered in December 2018, 8 years ago. Its declared purposes cover general charitable purposes, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.
In the financial year ending March 2025, Bardet-Biedl Syndrome UK (BBS UK) reported income of £396k and spending of £295k, leaving 26% of income unspent that year. Across the 5 years on record, from December 2020 to March 2025, income grew from £54k to £396k (+637%), an average of +65% a year. The sharpest change came in the year to March 2022, when income rose by 188%. Over the whole period it spent 84% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Bardet-Biedl Syndrome UK (BBS UK) sits at the 81st percentile: it is larger than about 81% of them. Against every charity in England and Wales with reported income it ranks in the 88th percentile. Charities of a similar size with the same main cause include Children of Pakistan Earthquake (£396k), John King Brain Tumour Foundation (£396k) and Voluntary Emergency Service Transport (V E S T) (£395k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
BBS UK provides support, information and advocacy services. It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome. The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Children of Pakistan Earthquake | Birmingham | £396k |
| John King Brain Tumour Foundation | Hounslow | £396k |
| Voluntary Emergency Service Transport (V E S T) | Cardiff | £395k |
| Youth Access | Surrey | £396k |