The Ehlers-Danlos Society

Analysis

The Ehlers-Danlos Society is a registered charity in England and Wales, based in London. It was registered in December 2018, 8 years ago. Its declared purposes cover education/training and disability, which this site groups under disability. Legally it is a charitable company (Companies House number 10722868). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending April 2025, The Ehlers-Danlos Society reported income of £1.6m and spending of £1.4m, spending 91% of its income. Across the 5 years on record, from April 2021 to April 2025, income grew from £430k to £1.6m (+261%), an average of +38% a year. The sharpest change came in the year to April 2023, when income rose by 103%. Over the whole period it spent 98% of the income it received.

Among 12,871 England and Wales charities whose main cause is disability and that reported income, The Ehlers-Danlos Society sits at the 94th percentile: it is larger than about 94% of them. Against every charity in England and Wales with reported income it ranks in the 95th percentile. Charities of a similar size with the same main cause include The Island Project (£1.5m), Sisters of the Holy Cross CIO (£1.6m) and Notre Dame de France – Society of Mary (£1.5m).

In its latest detailed accounts, income came from donations and legacies 100%. Charitable activities took 98% of spending and raising funds 0.0%. It employed 20 people.