Fibrous Dysplasia Support Society
Analysis
Fibrous Dysplasia Support Society is a registered charity in England and Wales, based in Derbyshire. It was registered in November 2017, 9 years ago. Its declared purposes cover the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 10336269). It says it provides advocacy/advice/information.
In the financial year ending March 2025, Fibrous Dysplasia Support Society reported income of £14k and spending of £1,357, leaving 90% of income unspent that year. Across the 5 years on record, from March 2021 to March 2025, income grew from £6,078 to £14k (+132%), an average of +24% a year. The sharpest change came in the year to March 2025, when income rose by 575%. Over the whole period it spent 30% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Fibrous Dysplasia Support Society sits at the 32nd percentile: it is larger than about 32% of them. Against every charity in England and Wales with reported income it ranks in the 37th percentile. Charities of a similar size with the same main cause include The Maccabe Family Charitable Trust (£14k), Woolwich and Greenwich Lions Club (CIO) (£14k) and Search and Rescue Relief Limited (£14k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| The Maccabe Family Charitable Trust | London | £14k |
| Woolwich and Greenwich Lions Club (CIO) | London | £14k |
| Search and Rescue Relief Limited | Buckinghamshire | £14k |
| Penygroes Memorial Hall and Institute | Dyfed | £14k |