International Niemann-Pick Disease Registry
Analysis
International Niemann-Pick Disease Registry is a registered charity in England and Wales, based in Sunderland. It was registered in October 2017, 9 years ago. Its declared purposes cover education/training and the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 10646129). It says it provides services and acts as an umbrella or resource body.
In the financial year ending March 2025, International Niemann-Pick Disease Registry reported income of £448k and spending of £368k, spending 82% of its income. Across the 5 years on record, from March 2021 to March 2025, income grew from £390k to £448k (+15%), an average of +3.5% a year. The sharpest change came in the year to March 2025, when income rose by 241%. Over the whole period it spent 102% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, International Niemann-Pick Disease Registry sits at the 82nd percentile: it is larger than about 82% of them. Against every charity in England and Wales with reported income it ranks in the 89th percentile. Charities of a similar size with the same main cause include The Pituitary Foundation (£448k), Charnwood 20:20 (£448k) and Sport at the Heart (£448k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| The Pituitary Foundation | Bristol | £448k |
| Charnwood 20:20 | Loughborough | £448k |
| Sport at the Heart | London | £448k |
| Home Start Warrington and Cheshire | Warrington | £448k |