UK Infantile Spasms Trust

Analysis

UK Infantile Spasms Trust is a registered charity in England and Wales, based in Bristol. It was registered in March 2017, 9 years ago. Its declared purposes cover general charitable purposes, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending March 2025, UK Infantile Spasms Trust reported income of £87k and spending of £40k, leaving 54% of income unspent that year. Across the 5 years on record, from April 2021 to March 2025, income grew from £40k to £87k (+117%), an average of +21% a year. The sharpest change came in the year to March 2025, when income rose by 97%. Over the whole period it spent 47% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, UK Infantile Spasms Trust sits at the 61st percentile: it is larger than about 61% of them. Against every charity in England and Wales with reported income it ranks in the 69th percentile. Charities of a similar size with the same main cause include Living Stones, Eastbourne (£87k), Turner Dumbrell Foundation (£87k) and The Rowland Brothers Foundation (£87k).