Pitt Hopkins UK
Analysis
Pitt Hopkins UK is a registered charity in England and Wales, based in West Sussex. It was registered in May 2016, 10 years ago. Its declared purposes cover disability, which this site groups under disability. Legally it is a charitable incorporated organisation (CIO). It says it provides advocacy/advice/information and sponsors or undertakes research.
In the financial year ending December 2025, Pitt Hopkins UK reported income of £23k and spending of £4,312, leaving 81% of income unspent that year. Across the 5 years on record, from December 2021 to December 2025, income fell from £34k to £23k (-33%), an average of -9.6% a year. The sharpest change came in the year to December 2024, when income rose by 37%. Over the whole period it spent 20% of the income it received.
Among 12,871 England and Wales charities whose main cause is disability and that reported income, Pitt Hopkins UK sits at the 42nd percentile: it is larger than about 42% of them. Against every charity in England and Wales with reported income it ranks in the 47th percentile. Charities of a similar size with the same main cause include Women Who Can (CIO) (£23k), The Ebi Foundation (£23k) and Girls with Pride and Dignity (£23k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
Pitt Hopkins UK aims to raise awareness of Pitt-Hopkins Syndrome (PTHS ), particularly among the health professionals, to support and advocate for families while delivering the latest information about PTHS.Pitt Hopkins UK also hopes to be able to fund some research one day particularly into the breathing anomalies that many of the children and adults exhibit
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Women Who Can (CIO) | Melton Mowbray | £23k |
| The Ebi Foundation | Norfolk | £23k |
| Girls with Pride and Dignity | Oldham | £23k |
| Hungarian School London | Woking | £23k |