Cambridge Rare Disease Network

Analysis

Cambridge Rare Disease Network is a registered charity in England and Wales, based in Cambridge. It was registered in April 2016, 10 years ago. Its declared purposes cover education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending December 2025, Cambridge Rare Disease Network reported income of £143k and spending of £193k, spending 135% of what it took in. Across the 5 years on record, from December 2021 to December 2025, income fell from £164k to £143k (-13%), an average of -3.3% a year. The sharpest change came in the year to December 2023, when income rose by 59%. Over the whole period it spent 99% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Cambridge Rare Disease Network sits at the 68th percentile: it is larger than about 68% of them. Against every charity in England and Wales with reported income it ranks in the 76th percentile. Charities of a similar size with the same main cause include The Mathieson Music Trust (£143k), Hunslet Rugby Foundation (£143k) and Sda Reform Movement (£143k).