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Action FCS

RegisteredRegistered charity number 1165873LondonHealth and saving lives
Income£38k2025-12-31
Spending£8,407same year
Spent / received34%5-year average
Size in its cause48th pctHealth and saving lives
Registered2016CIO
Employees–latest return

Analysis

Action FCS is a registered charity in England and Wales, based in London. It was registered in March 2016, 10 years ago. Its declared purposes cover the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it provides advocacy/advice/information.

In the financial year ending December 2025, Action FCS reported income of £38k and spending of £8,407, leaving 78% of income unspent that year. Across the 5 years on record, from December 2021 to December 2025, income grew from £1,857 to £38k (+1932%), an average of +112% a year. The sharpest change came in the year to December 2025, when income rose by 18762%. Over the whole period it spent 34% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Action FCS sits at the 48th percentile: it is larger than about 48% of them. Against every charity in England and Wales with reported income it ranks in the 56th percentile. Charities of a similar size with the same main cause include Headway Salford & District Limited (£38k), The Andrew Harris Charitable Trust (£38k) and Greenwood Riding for the Disabled Association Incorporating Carriage Driving (£38k).

Income and spending

£0£9,431£19k£28k£38k2021 Income: £1,8572021 Spending: £3,70020212022 Income: £2812022 Spending: £39820222023 Income: £3392023 Spending: £78720232024 Income: £2002024 Spending: £41520242025 Income: £37,7252025 Spending: £8,4072025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

Raising awareness of Familial Chylomicronaemia Syndrome (FCS) and related conditions; educating patients, medical personnel and the public in general about FCS; supporting people with FCS and those affected by it to live a full, healthy and integrated life; advocating for access to excellent care and new medicines for all patients with FCS.

Similar-sized charities, same cause

CharityLocationIncome
Headway Salford & District LimitedMiddleton£38k
The Andrew Harris Charitable TrustHove£38k
Greenwood Riding for the Disabled Association Incorporating Carriage DrivingMansfield£38k
North Petherton Community CentreSomerset£38k