Shwachman Diamond Syndrome UK
Analysis
Shwachman Diamond Syndrome UK is a registered charity in England and Wales, based in Lincoln. It was registered in November 2015, 11 years ago. Its declared purposes cover general charitable purposes, education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it makes grants to individuals, makes grants to organisations and provides human resources.
In the financial year ending October 2025, Shwachman Diamond Syndrome UK reported income of £57k and spending of £26k, leaving 55% of income unspent that year. Across the 5 years on record, from October 2021 to October 2025, income grew from £29k to £57k (+96%), an average of +18% a year. The sharpest change came in the year to October 2023, when income rose by 644%. Over the whole period it spent 56% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Shwachman Diamond Syndrome UK sits at the 54th percentile: it is larger than about 54% of them. Against every charity in England and Wales with reported income it ranks in the 63rd percentile. Charities of a similar size with the same main cause include Mujtaba Welfare Trust (£57k), The Richard Attenborough Charitable Trust (£57k) and Somerset Prostate Support Association (£57k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Mujtaba Welfare Trust | Stanmore | £57k |
| The Richard Attenborough Charitable Trust | Milton Keynes | £57k |
| Somerset Prostate Support Association | Winscombe | £57k |
| Kirkby Stephen Youth Centre | Cumbria | £57k |