Sudep Action
Analysis
Sudep Action is a registered charity in England and Wales, based in Wantage. It was registered in November 2015, 11 years ago. Its declared purposes cover the advancement of health or saving of lives and other charitable purposes, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it makes grants to organisations, provides services and provides advocacy/advice/information.
In the financial year ending March 2025, Sudep Action reported income of £518k and spending of £696k, spending 134% of what it took in. Across the 5 years on record, from March 2021 to March 2025, income grew from £501k to £518k (+3.3%), an average of +0.8% a year. The sharpest change came in the year to March 2023, when income rose by 31%. Over the whole period it spent 98% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Sudep Action sits at the 84th percentile: it is larger than about 84% of them. Against every charity in England and Wales with reported income it ranks in the 90th percentile. Charities of a similar size with the same main cause include Dabbagh Welfare Trust (£517k), Abortion Support Network (£518k) and Abayam - Foundation for Health and Education (£517k).
In its latest detailed accounts, income came from donations and legacies 97%, investments 1.5% and charitable activities 1.1%. Gifts in wills alone brought in £500. Charitable activities took 92% of spending and raising funds 8.2%. Reserves of £278k would cover about 5 months of spending at that rate. It employed 10 people.
Income and spending
Where the income comes from
- Donations 97%
- Legacies 0.1%
- Charitable activities 1.1%
- Investments 1.5%
In the charity's own words
SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Dabbagh Welfare Trust | Cheshire | £517k |
| Abortion Support Network | Coventry | £518k |
| Abayam - Foundation for Health and Education | Edgware | £517k |
| The Foyer Federation | Manchester | £518k |