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Cure Eb (Formerly Known As Sohana Research Fund)

RegisteredRegistered charity number 1158672LondonHealth and saving lives
Income£3.5m2025-12-31
Spending£1.3msame year
Spent / received53%5-year average
Size in its cause95th pctHealth and saving lives
Registered2014CIO
Employees0latest return

Analysis

Cure Eb (Formerly Known As Sohana Research Fund) is a registered charity in England and Wales, based in London. It was registered in September 2014, 12 years ago. Its declared purposes cover the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it makes grants to individuals, makes grants to organisations and sponsors or undertakes research.

In the financial year ending December 2025, Cure Eb (Formerly Known As Sohana Research Fund) reported income of £3.5m and spending of £1.3m, leaving 64% of income unspent that year. Across the 5 years on record, from December 2021 to December 2025, income grew from £1.6m to £3.5m (+127%), an average of +23% a year. The sharpest change came in the year to December 2024, when income rose by 564%. Over the whole period it spent 53% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Cure Eb (Formerly Known As Sohana Research Fund) sits at the 95th percentile: it is larger than about 95% of them. Against every charity in England and Wales with reported income it ranks in the 97th percentile. Charities of a similar size with the same main cause include All Aboard Shops Limited (£3.5m), Derby County Community Trust (£3.5m) and Spring Impact (£3.5m).

In its latest detailed accounts, income came from donations and legacies 98% and investments 1.8%. Charitable activities took 93% of spending and raising funds 6.4%. Grants to other organisations totalled £947k. Reserves of £7.4m would cover about 68 months of spending at that rate.

Income and spending

£0£1.2m£2.4m£3.6m£4.9m2021 Income: £1,565,3802021 Spending: £858,83920212022 Income: £1,000,8632022 Spending: £1,122,14520222023 Income: £730,9182023 Spending: £1,552,66620232024 Income: £4,850,7632024 Spending: £1,410,95420242025 Income: £3,548,3062025 Spending: £1,292,2402025
IncomeSpending

Where the income comes from

  • Donations 98%
  • Investments 1.8%

In the charity's own words

SRF seeks to assist those suffering from Epidermolysis Bullosa ("EB"), in particular but not exclusively by making grants:(1) to fund medical research and/or clinical trials anywhere in the world for the purpose of discovering, developing and delivering treatments for EB; and(2) to fund the treatment of patients who are suffering from EB.

Similar-sized charities, same cause

CharityLocationIncome
All Aboard Shops LimitedWatford£3.5m
Derby County Community TrustDerby£3.5m
Spring ImpactLondon£3.5m
The Sussex Community FoundationLewes£3.6m