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Phelan-Mcdermid Syndrome Foundation UK

RegisteredRegistered charity number 1157423LondonDisability
Income£65k2025-09-30
Spending£54ksame year
Spent / received88%5-year average
Size in its cause59th pctDisability
Registered2014CIO
Employees–latest return

Analysis

Phelan-Mcdermid Syndrome Foundation UK is a registered charity in England and Wales, based in London. It was registered in June 2014, 12 years ago. Its declared purposes cover disability, which this site groups under disability. Legally it is a charitable incorporated organisation (CIO). It says it makes grants to individuals, provides services and provides advocacy/advice/information.

In the financial year ending September 2025, Phelan-Mcdermid Syndrome Foundation UK reported income of £65k and spending of £54k, spending 84% of its income. Across the 5 years on record, from September 2021 to September 2025, income grew from £44k to £65k (+48%), an average of +10% a year. The sharpest change came in the year to September 2022, when income rose by 116%. Over the whole period it spent 88% of the income it received.

Among 12,871 England and Wales charities whose main cause is disability and that reported income, Phelan-Mcdermid Syndrome Foundation UK sits at the 59th percentile: it is larger than about 59% of them. Against every charity in England and Wales with reported income it ranks in the 65th percentile. Charities of a similar size with the same main cause include The Sayce James Charitable Trust (£65k), The Stowmarket Relief Trust (£65k) and Tiny Hands Baby Bank Yorkshire (£65k).

Income and spending

£0£26k£52k£78k£104k2021 Income: £43,7492021 Spending: £33,34620212022 Income: £94,5382022 Spending: £60,55920222023 Income: £89,0172023 Spending: £60,85720232024 Income: £63,2592024 Spending: £103,73820242025 Income: £64,7002025 Spending: £54,1382025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

Relief of the needs of people who have been diagnosed with PMS and their families in the UK and Ireland ? in particular, but not exclusively, by providing support, family days, information, financial grants for different therapies for the person with the syndrome and research endorsed by the international Phelan-McDermid Syndrome Foundation

Similar-sized charities, same cause

CharityLocationIncome
The Sayce James Charitable TrustMaesteg£65k
The Stowmarket Relief TrustSuffolk£65k
Tiny Hands Baby Bank YorkshirePontefract£65k
The Light of the World Gospel Hall Community ChurchBradford£65k