Wolfram Syndrome UK
Analysis
Wolfram Syndrome UK is a registered charity in England and Wales, based in Worthing. It was registered in June 2013, 13 years ago. Its declared purposes cover general charitable purposes, education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.
In the financial year ending February 2026, Wolfram Syndrome UK reported income of £135k and spending of £139k, spending 103% of its income. Across the 5 years on record, from February 2022 to February 2026, income grew from £43k to £135k (+213%), an average of +33% a year. The sharpest change came in the year to February 2023, when income rose by 151%. Over the whole period it spent 93% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Wolfram Syndrome UK sits at the 67th percentile: it is larger than about 67% of them. Against every charity in England and Wales with reported income it ranks in the 75th percentile. Charities of a similar size with the same main cause include Royal Humane Society (£135k), Leigh Park Community Centre (Westbury) (£135k) and Lonsdale Community Centre Ltd (£135k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
WOLFRAM SYNDROME UK PROVIDES INFORMATION, FAMILY SUPPORT AND ADVICE FOR INDIVIDUALS AFFECTED, THEIR FAMILIES, CARERS AND PROFESSIONALS. WE WORK CLOSELY WITH BIRMINGHAM CHILDREN'S HOSPITAL & SOON QEH, BIRMINGHAM TO SUPPORT THE MULTI-DISCIPLINARY CLINICS FOR WS PATIENTS. WE RAISE MONEY FOR RESEARCH. WE ENDEAVOUR TO RAISE AWARENESS OF WOLFRAM SYNDROME. WE PROVIDE A 24 HOUR ANSWER-MACHINE HELP-LINE.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Royal Humane Society | London | £135k |
| Leigh Park Community Centre (Westbury) | Westbury | £135k |
| Lonsdale Community Centre Ltd | Hull | £135k |
| Lumi Foundation | Green Lanes | £135k |