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Wolfram Syndrome UK

RegisteredRegistered charity number 1152445WorthingHealth and saving lives
Income£135k2026-02-28
Spending£139ksame year
Spent / received93%5-year average
Size in its cause67th pctHealth and saving lives
Registered2013CIO
Employees–latest return

Analysis

Wolfram Syndrome UK is a registered charity in England and Wales, based in Worthing. It was registered in June 2013, 13 years ago. Its declared purposes cover general charitable purposes, education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending February 2026, Wolfram Syndrome UK reported income of £135k and spending of £139k, spending 103% of its income. Across the 5 years on record, from February 2022 to February 2026, income grew from £43k to £135k (+213%), an average of +33% a year. The sharpest change came in the year to February 2023, when income rose by 151%. Over the whole period it spent 93% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Wolfram Syndrome UK sits at the 67th percentile: it is larger than about 67% of them. Against every charity in England and Wales with reported income it ranks in the 75th percentile. Charities of a similar size with the same main cause include Royal Humane Society (£135k), Leigh Park Community Centre (Westbury) (£135k) and Lonsdale Community Centre Ltd (£135k).

Income and spending

£0£35k£70k£105k£140k2022 Income: £43,1572022 Spending: £48,19720222023 Income: £108,1162023 Spending: £64,91120232024 Income: £136,3992024 Spending: £113,86520242025 Income: £121,2282025 Spending: £139,72320252026 Income: £135,1982026 Spending: £138,7722026
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

WOLFRAM SYNDROME UK PROVIDES INFORMATION, FAMILY SUPPORT AND ADVICE FOR INDIVIDUALS AFFECTED, THEIR FAMILIES, CARERS AND PROFESSIONALS. WE WORK CLOSELY WITH BIRMINGHAM CHILDREN'S HOSPITAL & SOON QEH, BIRMINGHAM TO SUPPORT THE MULTI-DISCIPLINARY CLINICS FOR WS PATIENTS. WE RAISE MONEY FOR RESEARCH. WE ENDEAVOUR TO RAISE AWARENESS OF WOLFRAM SYNDROME. WE PROVIDE A 24 HOUR ANSWER-MACHINE HELP-LINE.

Similar-sized charities, same cause

CharityLocationIncome
Royal Humane SocietyLondon£135k
Leigh Park Community Centre (Westbury)Westbury£135k
Lonsdale Community Centre LtdHull£135k
Lumi FoundationGreen Lanes£135k