International Niemann-Pick Disease Alliance
Analysis
International Niemann-Pick Disease Alliance is a registered charity in England and Wales, based in Sunderland. It was registered in December 2012, 14 years ago. Its declared purposes cover education/training and the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 08287609). It says it provides advocacy/advice/information and acts as an umbrella or resource body.
In the financial year ending March 2025, International Niemann-Pick Disease Alliance reported income of £187k and spending of £184k, spending 99% of its income. Across the 5 years on record, from March 2021 to March 2025, income grew from £42k to £187k (+349%), an average of +46% a year. The sharpest change came in the year to March 2023, when income rose by 260%. Over the whole period it spent 65% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, International Niemann-Pick Disease Alliance sits at the 72nd percentile: it is larger than about 72% of them. Against every charity in England and Wales with reported income it ranks in the 80th percentile. Charities of a similar size with the same main cause include Rockets Sport and Educational Foundation (£186k), Free Legal Advice Group for Domestic Violence (Flag DV) (£187k) and Whisper (£186k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
A network for non-profit organisations associated with the group of rare diseases known as Niemann-Pick Disease (NPD). The organisation aims to facilitate progress in research and understanding, family support and information services by providing an international forum. The organisation meets by teleconference every three months and bi-annually face to face.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| Rockets Sport and Educational Foundation | Reading | £186k |
| Free Legal Advice Group for Domestic Violence (Flag DV) | Newbury | £187k |
| Whisper | Somerset | £186k |
| Ashanti Development | London | £187k |