Rubinstein-Taybi Syndrome Support Group
Analysis
Rubinstein-Taybi Syndrome Support Group is a registered charity in England and Wales, based in Hertfordshire. It was registered in June 2012, 14 years ago. Its declared purposes cover general charitable purposes, education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 07866190). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.
In the financial year ending December 2025, Rubinstein-Taybi Syndrome Support Group reported income of £25k and spending of £19k, leaving 24% of income unspent that year. Across the 5 years on record, from December 2021 to December 2025, income grew from £22k to £25k (+13%), an average of +3.2% a year. The sharpest change came in the year to December 2022, when income rose by 54%. Over the whole period it spent 85% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Rubinstein-Taybi Syndrome Support Group sits at the 42nd percentile: it is larger than about 42% of them. Against every charity in England and Wales with reported income it ranks in the 49th percentile. Charities of a similar size with the same main cause include South East London Breast Cancer Trust (£25k), The Elda Latin Charitable Trust (£25k) and The Erasmus Foundation (£25k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
We seek to create a positive supportive network of parents, families and professionals in order to share information and experiences and to give emotional support. Activities include hosting regular get-togethers to support families of those affected by RTS; and the publication of an information booklet, regular newsletters and a website.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| South East London Breast Cancer Trust | Kent | £25k |
| The Elda Latin Charitable Trust | Whiteley | £25k |
| The Erasmus Foundation | Woodbridge | £25k |
| Kashmir National Cultural and Welfare Trust, UK | Bradford | £25k |