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Fop Friends

RegisteredRegistered charity number 1147704SaleHealth and saving lives
Income£103k2025-12-31
Spending£108ksame year
Spent / received81%5-year average
Size in its cause63rd pctHealth and saving lives
Registered2012Trust
Employees–latest return

Analysis

Fop Friends is a registered charity in England and Wales, based in Sale. It was registered in June 2012, 14 years ago. Its declared purposes cover the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable trust. It says it provides other finance and sponsors or undertakes research.

In the financial year ending December 2025, Fop Friends reported income of £103k and spending of £108k, spending 105% of its income. Across the 5 years on record, from March 2022 to December 2025, income fell from £245k to £103k (-58%), an average of -20% a year. The sharpest change came in the year to December 2024, when income rose by 71%. Over the whole period it spent 81% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Fop Friends sits at the 63rd percentile: it is larger than about 63% of them. Against every charity in England and Wales with reported income it ranks in the 71st percentile. Charities of a similar size with the same main cause include Niamh's Next Step CIO (£103k), Eyehope (£103k) and Teddies for Loving Care Essex (TLC Essex) (£103k).

Income and spending

£0£61k£123k£184k£245k2022 Income: £245,2522022 Spending: £162,74820222023 Income: £231,4132023 Spending: £141,35720232024 Income: £83,6172024 Spending: £58,32220242024 Income: £142,8402024 Spending: £182,89320242025 Income: £102,8392025 Spending: £107,7452025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.

Similar-sized charities, same cause

CharityLocationIncome
Niamh's Next Step CIOWellingborough£103k
EyehopeSt Thomas' Hospital£103k
Teddies for Loving Care Essex (TLC Essex)Essex£103k
Star - Steps to Active RecoveryDorset£103k