The Society for Mucopolysaccharide Diseases

Analysis

The Society for Mucopolysaccharide Diseases is a registered charity in England and Wales, based in Amersham. It was registered in August 2011, 15 years ago. Its declared purposes cover education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 07726882). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending December 2025, The Society for Mucopolysaccharide Diseases reported income of £2.2m and spending of £2.2m, spending 99% of its income. Across the 5 years on record, from December 2021 to December 2025, income grew from £1.4m to £2.2m (+51%), an average of +11% a year. The sharpest change came in the year to December 2022, when income rose by 19%. Over the whole period it spent 106% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, The Society for Mucopolysaccharide Diseases sits at the 94th percentile: it is larger than about 94% of them. Against every charity in England and Wales with reported income it ranks in the 96th percentile. Charities of a similar size with the same main cause include Plymouth Age Concern (£2.2m), Congregation of Servants of Mary (London) (£2.2m) and Aghosh UK (£2.2m).

In its latest detailed accounts, income came from trading 43%, charitable activities 40%, donations and legacies 12% and investments 4.3%. Gifts in wills alone brought in £18k. Charitable activities took 65% of spending and raising funds 30%. Grants to other organisations totalled £250k. Reserves of £750k would cover about 4 months of spending at that rate. It employed 30 people.