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Noonan Syndrome Association

Registered · see notesRegistered charity number 1140671LancashireHealth and saving lives
Income£48k2025-03-31
Spending£81ksame year
Spent / received105%5-year average
Size in its cause52nd pctHealth and saving lives
Registered2011Other
Employees–latest return

Analysis

Noonan Syndrome Association is a registered charity in England and Wales, based in Lancashire. It was registered in March 2011, 15 years ago. Its declared purposes cover the advancement of health or saving of lives and disability, which this site groups under health and saving lives. It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending March 2025, Noonan Syndrome Association reported income of £48k and spending of £81k, spending 169% of what it took in. Across the 5 years on record, from March 2021 to March 2025, income fell from £66k to £48k (-27%), an average of -7.7% a year. The sharpest change came in the year to March 2025, when income rose by 58%. Over the whole period it spent 105% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Noonan Syndrome Association sits at the 52nd percentile: it is larger than about 52% of them. Against every charity in England and Wales with reported income it ranks in the 60th percentile. Charities of a similar size with the same main cause include The National Federation of Sub-Postmasters Benevolent Fund (£48k), Bace (£48k) and Bournemouth Lifeguard Corps (£48k).

Data notes from the register: Spending has exceeded income in each of the last three reported years, so the charity has been drawing on reserves or other funds.

Income and spending

£0£20k£41k£61k£81k2021 Income: £66,2962021 Spending: £32,32120212022 Income: £63,2602022 Spending: £39,07020222023 Income: £59,8982023 Spending: £80,47420232024 Income: £30,4272024 Spending: £48,33220242025 Income: £48,0672025 Spending: £81,3932025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

The SUPPORT of those affected by Noonan Syndrome and related conditions (on the Ras/MAPK Pathway) by events, social media, publications etc.RESEARCH to advance improvements in understanding and in the care and management of those affected or at risk.RAISING AWARENESS of the condition

Similar-sized charities, same cause

CharityLocationIncome
The National Federation of Sub-Postmasters Benevolent FundWest Sussex£48k
BaceRye£48k
Bournemouth Lifeguard CorpsBournemouth£48k
Alder Hey Children's Kidney FundLiverpool£48k