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Rett UK

RegisteredRegistered charity number 1137820LutonHealth and saving lives
Income£558k2026-03-31
Spending£362ksame year
Spent / received93%5-year average
Size in its cause84th pctHealth and saving lives
Registered2010Charitable company
Employees5latest return

Analysis

Rett UK is a registered charity in England and Wales, based in Luton. It was registered in September 2010, 16 years ago. Its declared purposes cover the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 07339522). It says it provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending March 2026, Rett UK reported income of £558k and spending of £362k, leaving 35% of income unspent that year. Across the 5 years on record, from March 2022 to March 2026, income grew from £320k to £558k (+75%), an average of +15% a year. The sharpest change came in the year to March 2026, when income rose by 64%. Over the whole period it spent 93% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Rett UK sits at the 84th percentile: it is larger than about 84% of them. Against every charity in England and Wales with reported income it ranks in the 91st percentile. Charities of a similar size with the same main cause include PSC Support (£558k), The Royal College of Chiropractors (£558k) and Basildon, Billericay and Wickford Council for Voluntary Service (£558k).

In its latest detailed accounts, income came from donations and legacies 99%. Gifts in wills alone brought in £286k. Charitable activities took 73% of spending and raising funds 26%. Reserves of £317k would cover about 10 months of spending at that rate. It employed 5 people.

Income and spending

£0£140k£279k£419k£558k2022 Income: £319,7582022 Spending: £311,44220222023 Income: £365,0722023 Spending: £353,84920232024 Income: £305,8812024 Spending: £318,56020242025 Income: £341,1682025 Spending: £416,71020252026 Income: £558,1702026 Spending: £361,7592026
IncomeSpending

Where the income comes from

  • Donations 48%
  • Legacies 51%
  • Trading 0.7%
  • Investments 0.1%

In the charity's own words

Rett syndrome is the most common cause of profound and multiple disability in females. A complex neurological condition genetic but not usually hereditary, it can occur in any family. We offer support, advocacy and advice to all those affected. We fund research to improve diagnosis, ameliarate symptoms and improve the quality of life of the thousands of people living with Rett syndrome today.

Similar-sized charities, same cause

CharityLocationIncome
PSC SupportManchester£558k
The Royal College of ChiropractorsOxfordshire£558k
Basildon, Billericay and Wickford Council for Voluntary ServiceEssex£558k
Help in Need TodayLondon£558k