Myotubular Trust
Analysis
Myotubular Trust is a registered charity in England and Wales, based in London. It was registered in July 2010, 16 years ago. Its declared purposes cover the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 07260229). It says it makes grants to individuals, makes grants to organisations and provides advocacy/advice/information.
In the financial year ending December 2025, Myotubular Trust reported income of £147k and spending of £315k, spending 214% of what it took in. Across the 5 years on record, from December 2021 to December 2025, income grew from £145k to £147k (+1.5%), an average of +0.4% a year. The sharpest change came in the year to December 2023, when income dropped by 20%. Over the whole period it spent 107% of the income it received.
Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Myotubular Trust sits at the 68th percentile: it is larger than about 68% of them. Against every charity in England and Wales with reported income it ranks in the 77th percentile. Charities of a similar size with the same main cause include St Marys Secret Garden Limited (£147k), Flaming Evangelical Ministries U.k. (£147k) and Betws Family Centre (£147k).
Income and spending
Where the income comes from
- Other 100%
In the charity's own words
The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date.
Similar-sized charities, same cause
| Charity | Location | Income |
|---|---|---|
| St Marys Secret Garden Limited | Exeter | £147k |
| Flaming Evangelical Ministries U.k. | Rochester | £147k |
| Betws Family Centre | Ammanford | £147k |
| South Axholme Community Swimming Pool Association | South Yorkshire | £147k |