Myotonic Dystrophy Support Group

Analysis

Myotonic Dystrophy Support Group is a registered charity in England and Wales, based in Nottingham. It was registered in February 2010, 16 years ago. Its declared purposes cover general charitable purposes, education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 07144171). It says it makes grants to individuals, makes grants to organisations and provides human resources.

In the financial year ending December 2025, Myotonic Dystrophy Support Group reported income of £136k and spending of £184k, spending 135% of what it took in. Across the 5 years on record, from December 2021 to December 2025, income fell from £216k to £136k (-37%), an average of -11% a year. The sharpest change came in the year to December 2023, when income rose by 136%. Over the whole period it spent 61% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Myotonic Dystrophy Support Group sits at the 67th percentile: it is larger than about 67% of them. Against every charity in England and Wales with reported income it ranks in the 75th percentile. Charities of a similar size with the same main cause include University of the Third Age Farnborough and District (£136k), Forever Stars Limited (£136k) and The Greenland School and Orphanage Appeal, Uganda (£136k).