Dravet Syndrome UK

Analysis

Dravet Syndrome UK is a registered charity in England and Wales, based in Chesterfield. It was registered in February 2009, 17 years ago. Its declared purposes cover the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable trust. It says it makes grants to individuals, provides services and provides advocacy/advice/information.

In the financial year ending January 2026, Dravet Syndrome UK reported income of £640k and spending of £735k, spending 115% of what it took in. Across the 5 years on record, from January 2022 to January 2026, income grew from £343k to £640k (+87%), an average of +17% a year. The sharpest change came in the year to January 2023, when income rose by 33%. Over the whole period it spent 109% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Dravet Syndrome UK sits at the 86th percentile: it is larger than about 86% of them. Against every charity in England and Wales with reported income it ranks in the 91st percentile. Charities of a similar size with the same main cause include The Manny Cohen Foundation (£640k), Stockport Womens Centre (£641k) and Nottinghamshire Royal Society for the Blind (£640k).

In its latest detailed accounts, income came from donations and legacies 96% and trading 1.2%. Gifts in wills alone brought in £1,000. Charitable activities took 86% of spending and raising funds 6.3%. Reserves of £207k would cover about 3 months of spending at that rate. It employed 9 people.