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Fanconi Hope

Registered · see notesRegistered charity number 1126894ChesterfieldHealth and saving lives
Income£55k2025-04-30
Spending£75ksame year
Spent / received131%5-year average
Size in its cause54th pctHealth and saving lives
Registered2008Trust
Employees–latest return

Analysis

Fanconi Hope is a registered charity in England and Wales, based in Chesterfield. It was registered in November 2008, 18 years ago. Its declared purposes cover the advancement of health or saving of lives, which this site groups under health and saving lives. Legally it is a charitable trust. It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending April 2025, Fanconi Hope reported income of £55k and spending of £75k, spending 137% of what it took in. Across the 5 years on record, from April 2021 to April 2025, income grew from £27k to £55k (+102%), an average of +19% a year. The sharpest change came in the year to April 2024, when income rose by 83%. Over the whole period it spent 131% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Fanconi Hope sits at the 54th percentile: it is larger than about 54% of them. Against every charity in England and Wales with reported income it ranks in the 62nd percentile. Charities of a similar size with the same main cause include Impactful Lives (£55k), Berkshire Lowland Search and Rescue (£55k) and The Grenfell Foundation (£55k).

Data notes from the register: Spending has exceeded income in each of the last three reported years, so the charity has been drawing on reserves or other funds.

Income and spending

£0£24k£48k£72k£96k2021 Income: £27,0652021 Spending: £20,20620212022 Income: £36,8432022 Spending: £47,97120222023 Income: £38,7512023 Spending: £59,48020232024 Income: £70,8972024 Spending: £96,04420242025 Income: £54,7792025 Spending: £75,0142025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

Connecting families and raising awareness amongst affected families and the general public.UK research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support.Attendance at Medical events and conferences.Initiation and co-sponsorship of International FA Gene Therapy Working Group.

Similar-sized charities, same cause

CharityLocationIncome
Impactful LivesHertfordshire£55k
Berkshire Lowland Search and RescueBerkshire£55k
The Grenfell FoundationLondon£55k
The Link with Emmanuel Christian FellowshipMerseyside£55k