Rare Chromosome Disorder Support Group

Analysis

Rare Chromosome Disorder Support Group is a registered charity in England and Wales, based in Surrey. It was registered in August 2005, 21 years ago. Its declared purposes cover the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 05460413). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending March 2026, Rare Chromosome Disorder Support Group reported income of £458k and spending of £446k, spending 97% of its income. Across the 5 years on record, from March 2022 to March 2026, income grew from £305k to £458k (+50%), an average of +11% a year. The sharpest change came in the year to March 2024, when income rose by 37%. Over the whole period it spent 102% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Rare Chromosome Disorder Support Group sits at the 82nd percentile: it is larger than about 82% of them. Against every charity in England and Wales with reported income it ranks in the 89th percentile. Charities of a similar size with the same main cause include Life Education Wessex (£458k), Missionary Sisters of the Sacred Heart (£458k) and The Cosaraf Charitable Foundation (£457k).