Spinal Muscular Atrophy UK

Analysis

Spinal Muscular Atrophy UK is a registered charity in England and Wales, based in Stratford-upon-Avon. It was registered in November 2004, 22 years ago. Its declared purposes cover the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable incorporated organisation (CIO). It says it makes grants to individuals, provides services and provides advocacy/advice/information.

In the financial year ending March 2026, Spinal Muscular Atrophy UK reported income of £1.3m and spending of £1.5m, spending 113% of what it took in. Across the 5 years on record, from March 2022 to March 2026, income grew from £839k to £1.3m (+55%), an average of +12% a year. The sharpest change came in the year to March 2024, when income rose by 37%. Over the whole period it spent 90% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Spinal Muscular Atrophy UK sits at the 91st percentile: it is larger than about 91% of them. Against every charity in England and Wales with reported income it ranks in the 95th percentile. Charities of a similar size with the same main cause include New Life Christian Centre (Croydon) (£1.3m), Rape Crisis Tyneside and Northumberland (£1.3m) and Roald Dahl's Marvellous Children's Charity (£1.3m).

In its latest detailed accounts, income came from donations and legacies 98% and investments 1.3%. Charitable activities took 73% of spending and raising funds 20%. Reserves of £493k would cover about 4 months of spending at that rate. It employed 19 people.