Alex, The Leukodystrophy Charity

Analysis

Alex, The Leukodystrophy Charity is a registered charity in England and Wales, based in London. It was registered in September 2004, 22 years ago. Its declared purposes cover education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 05142341). It says it makes grants to individuals, makes grants to organisations and provides services.

In the financial year ending June 2025, Alex, The Leukodystrophy Charity reported income of £1.1m and spending of £1.0m, spending 95% of its income. Across the 5 years on record, from June 2021 to June 2025, income grew from £732k to £1.1m (+47%), an average of +10% a year. The sharpest change came in the year to June 2022, when income rose by 22%. Over the whole period it spent 99% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, Alex, The Leukodystrophy Charity sits at the 90th percentile: it is larger than about 90% of them. Against every charity in England and Wales with reported income it ranks in the 94th percentile. Charities of a similar size with the same main cause include The Colt Foundation (£1.1m), Wishing Well Project (£1.1m) and High Flyers (South Staffs) Limited (£1.1m).

In its latest detailed accounts, income came from trading 66% and donations and legacies 33%. Charitable activities took 29% of spending and raising funds 70%. Reserves of £202k would cover about 2 months of spending at that rate. It employed 27 people.