The Ataxia-Telangiectasia Society

Analysis

The Ataxia-Telangiectasia Society is a registered charity in England and Wales, based in Herts. It was registered in August 2004, 22 years ago. Its declared purposes cover the advancement of health or saving of lives, disability and arts/culture/heritage/science, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 05177145). It says it makes grants to individuals, makes grants to organisations and provides advocacy/advice/information.

In the financial year ending December 2025, The Ataxia-Telangiectasia Society reported income of £1.1m and spending of £636k, leaving 42% of income unspent that year. Across the 5 years on record, from December 2021 to December 2025, income grew from £368k to £1.1m (+200%), an average of +32% a year. The sharpest change came in the year to December 2025, when income rose by 68%. Over the whole period it spent 94% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, The Ataxia-Telangiectasia Society sits at the 90th percentile: it is larger than about 90% of them. Against every charity in England and Wales with reported income it ranks in the 94th percentile. Charities of a similar size with the same main cause include The Society for Cardiothoracic Surgery in Great Britain and Ireland (£1.1m), Wecare Worldwide (£1.1m) and The Mill Charitable Trust (£1.1m).

In its latest detailed accounts, income came from donations and legacies 88%, trading 8.9%, investments 2.2% and charitable activities 1.2%. Gifts in wills alone brought in £401k. Charitable activities took 73% of spending and raising funds 23%. Reserves of £882k would cover about 16 months of spending at that rate. It employed 9 people.