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The Alkaptonuria Society Ltd

RegisteredRegistered charity number 1101052CambridgeHealth and saving lives
Income£368k2025-06-30
Spending£295ksame year
Spent / received74%5-year average
Size in its cause80th pctHealth and saving lives
Registered2003Charitable company
Employees–latest return

Analysis

The Alkaptonuria Society Ltd is a registered charity in England and Wales, based in Cambridge. It was registered in December 2003, 23 years ago. Its declared purposes cover education/training, the advancement of health or saving of lives and disability, which this site groups under health and saving lives. Legally it is a charitable company (Companies House number 04814120). It says it provides services, provides advocacy/advice/information and sponsors or undertakes research.

In the financial year ending June 2025, The Alkaptonuria Society Ltd reported income of £368k and spending of £295k, spending 80% of its income. Across the 5 years on record, from June 2021 to June 2025, income grew from £335k to £368k (+9.7%), an average of +2.3% a year. The sharpest change came in the year to June 2022, when income rose by 75%. Over the whole period it spent 74% of the income it received.

Among 24,651 England and Wales charities whose main cause is health and saving lives and that reported income, The Alkaptonuria Society Ltd sits at the 80th percentile: it is larger than about 80% of them. Against every charity in England and Wales with reported income it ranks in the 87th percentile. Charities of a similar size with the same main cause include North Paddington Youth Club (£368k), Muslim Help UK (£368k) and London Community Boxing Limited (£368k).

Income and spending

£0£147k£293k£440k£587k2021 Income: £335,2222021 Spending: £272,75020212022 Income: £586,7082022 Spending: £300,35120222023 Income: £381,0372023 Spending: £292,61820232024 Income: £319,3922024 Spending: £307,37020242025 Income: £367,7262025 Spending: £294,9292025
IncomeSpending

Where the income comes from

  • Other 100%

In the charity's own words

The Alkaptonuria Society is a patient group organisation which helps and supports people with Alkaptonuria a rare genetic disease. It helps people who suffer from Alkaptonuria and we receive worldwide enquiries. We are involved in research with the University of Liverpool to find a cure for Alkaptonuria.

Similar-sized charities, same cause

CharityLocationIncome
North Paddington Youth ClubLondon£368k
Muslim Help UKLondon£368k
London Community Boxing LimitedLondon£368k
The Haslemere and District Community CentreSurrey£368k